Monday, January 14, 2013

Indonesia Bubble Man Still Seeking Cure

****Please note: Images are very very graphic. ****
His story first caught the attention of the globe in the middle of 2012. This is 2013 and he is still searching for a cure. His name is CHANDRA WISNU and he is from Indonesia. His wife is Nanik Tri Haryani and they got married 33 years ago, when he was very handsome, and from a relatively well-to-do home. Now 57 years old, he has been transformed to such an extent that he is now referred to as the Bubble Man of Indonesia. It all started shortly before his wedding at the age of 19 when he noticed small round growths on his back. 
When he was young and handsome.

With his wife of 33 years.
By the time he turned 32, the growths took over his entire body and he was forced to lock himself up in the house to keep him away from staring eyes. And when he rarely did go out, he had to put on three layers of jackets, a face mask and sunglasses so that the kids around will not be scared to death. He says to

“People are afraid, they are frightened of my horrible face and worried they might catch the disease. So instead I avoid people, I rarely go out except to pick up my daughter from school. And when I do I cover my head and my face because I don’t want my daughter’s friends to bully her for having ‘the dad with the horrible face’.”
He has four kids and two of them have already started showing signs of the disease. He has seen countless doctors and dermatologists have not been able to pinpoint exactly what is wrong with him. However, they suspect that it can be benign tumors of the bone and skin originating from the nervous system, and having a genetic basis (I agree with that).
With his wife.
His 26-year-old daughter, Lis Chandra is already showing signs of the disease.
His greatest fear is now for his kids who are already gradually being disfigured by the disease.
Well, there is a good side to the story. His wife has refused to leave him even when he told her to go and never return. She has stated that seeing him living with the disease is a sign of great strength and not a weakness (Seends, you remember the ‘aya‘ and ‘iyawo‘ analogy ba?). Married for more than 33 years now, she has remained his source of strength. You can watch a video of him and his wife here: The poor man has exhausted his finances on all sorts of treatment without any cure and his biggest worry now is his children coming down with the affliction. Well, while writing this, I was just imagining Nigeria to be the global base of cutting-edge medical technology where people from all over the world come to in their thousands for all kinds of treatment. Then I woke up.
Thanks a lot for your time.

No comments:

Post a Comment